My name is Emmanuel, I am 33 years old. I was diagnosed with Irritable Bowel Syndrome (IBS) at the end of 2017. It had been several years that I had been having intestinal problems, about 6 years before the diagnosis I would say. I could finally put a name to what was causing my bowel problems.
The gastroenterologist told me it was for life and that apart from a course of probiotics (which only made things worse), there was nothing we could do about it. Just before leaving, he quickly told me about the “fodmap diet”, without recommending it more than that.
While reading up on IBS and hearing about this diet, I decided to test a diet low in fodmaps, which I started a few months later. Although I think I am one of those people for whom IBS symptoms are relatively mild, more like a big permanent discomfort, there was no doubt about the effectiveness of this diet in my case. Revelation.
Going in 6 months from “it’s for life, there’s nothing you can do” to “I’m discovering a diet, certainly restrictive, but which by following it really works”, was a great relief.
But following this diet is difficult and restrictive, we’re not going to hide it. The medical profession is not always up to date with scientific advances on this subject (the fodmap diet is just over 10 years old), the media and the general public know little about the disease or the diet even though it’s being better each year, online resources are often contradictory, etc. For such a complex subject, we could do better.
Given the current state of available resources, it was and still is a real struggle to get what you need when you get going. I would have liked to find more articles and tools to search among pre-approved fodmaps recipes for example, while staying in the realm of “normal” recipes and as classic as possible (no chia seeds or millet flour, I don’t have that in my cupboards!!!).
As a result, I created Fodmapedia in early 2019, with the goal of being a reference of knowledge around fodmap, to create dedicated tools and to federate a large community of mutual aid. That’s what I would have liked to have at the beginning, but even today I still have a lot to learn and I hope to progress with you.
The feedback I received on the fodmap database is very encouraging and brings motivation to continue. It’s so much more pleasant not to be alone in this process!